International CTEPH Association (ICA)

The International CTEPH Association is an organisation of physicians, surgeons and other medically qualified professionals committed to advancing the diagnosis and treatment of CTEPH, and thus improving the clinical outcome and long-term care for affected patients.

The Association’s key objectives are to:

• Increase awareness of chronic thromboembolic pulmonary hypertension (CTEPH)
• Advance research and evaluate new therapeutic approaches in CTEPH
• Foster worldwide collaboration among CTEPH centres
• Improve education to facilitate training and improving education of emerging centres
• Provide clinical expert opinion to surgical and interventional centres

The ICA is dedicated to working together with patient organisations and partners to reach these objectives. The Association ensures that all projects undertaken are to the benefit of patients exclusively and remain independent of commercial interest.

Current ongoing initiatives:

TEAM registry
Triennial International Conference on CTEPH

News

Long-term effects of medical treatment in the New International CTEPH Registry published in ERJ Open Res

The ICA are delighted to announce the publication of data on the long-term effects of medical treatment in the New International CTEPH Registry (Delcroix M et al., ERJ Open Res 2025; 00769-2025; DOI: https://doi.org/10.1183/23120541.00769-2025). Data suggest that treatment with a guanylate cyclase stimulator may be associated with a survival advantage in patients undergoing BPA or no mechanical intervention, thus confirming the results of previous randomised controlled trials in a real-world setting.

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Proceedings of the International CTEPH Conference 2023 published in J Heart Lung Transplant

The ICA are delighted to announce the publication of the proceedings of the International CTEPH Conference 2023 as a supplement in J Heart Lung Transplant (Volume 44, Issue 7, Supplement, July 2025). The supplement contains two review articles covering the diagnosis and management of CTEPH, as well as all accepted abstracts. The ICA would like to thank the International Society for Heart and Lung Transplantation (ISHLT) for sponsoring the publication of this supplement.

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International CTEPH Conference 2026

Join us for the International CTEPH Conference (ICC) 2026, taking place 11–13 June 2026 in Warsaw, Poland. For the first time, the ICC partners with regional experts to spotlight emerging perspectives from Eastern Europe and beyond. The program will feature cutting-edge science, from diagnostics and imaging to interventional and multimodal therapy, presented through workshops and symposia. We would be delighted to welcome you to Warsaw to connect and shape the future of pulmonary vascular care in venous thromboembolism together.

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